Sunday, December 19, 2010

Early Care

I have been posting a lot lately about "knowing your status" which everyone should know but I have not been talking enough about what to do if you test positive.  A friend reminded me of that today and asked if I could share what she is currently going thru to express the importance of seeking care if you test positive.  Finding out that you just tested positive for HIV is life changing to say the least but it starts a whole new chapter in life.  You know must put that knowledge to use by beginning you long term health care.  Find a doctor and start educating yourself on what you need to do to stay healthy.

Here is what she asked me to share:


I was talking with my friend and asked him if I could share his story with you....
I've known him since I was 10 and he was 11. He got into drugs around age 16. He had a rough upbringing and once Meth got ahold of him, it rarely let go. He's been in and out of prision his whole adult life. On one of those trips to prison when he was about 19, he found out he was HIV positive and HEP C positive. It took him many, many years to acknowledge that the docs in prison weren't lying to him. His head was so clouded with Meth. He didn't get the care and treatment that he needed and he didn't quit drugs for any extended period of time. He's now 31 years old and he's in the hospital and it doesn't look like he'll ever be coming home. Many of us have stuck by him despite the drug use and it breaks our heart to see him like this. He's finally acknowledged that "all the bad things I did to myself finally caught up with me." Yet, he doesn't want to face facts and start planning for what seems to be inevitable. His T Cells are zero so the dr's have decided against removing his gallbladder. He's down from 200 to 119 pounds.
I'm sharing this with you because I think that as important as it is to get tested and know your status, it's just as important to do something about it once you do. I am proud of you for being proactive and getting the word out there.
I am going to miss my friend.

Tuesday, December 14, 2010

The Holidays

Back in December 2005 I had a really difficult time with Christmas.  Having just found out that I was HIV Positive and being out on a cruise ship and away from home at a time where I wanted to be at home.  Here I was stuck on a ship hiding this secret from pretty much everyone and trying to research and get information and educate myself on HIV.  I had told one person at this point then I told my long time best friend Shannon and then I told my adage partner, best friend, fiance, you name it she is it to me, Valerie.


At one point on the ship Valerie came to me and let me know that someone had told others about my status and people were talking about it behind my back.  That was all finally cleared up and brought to light and thank god for Valerie and her always having my back.  One day after a rehearsal two on the ship two people came up to me and told me someone was still talking about it and sharing my status with others.  (just so everyone knows it is never okay to reveal someone status without their permission that is for them to share not you) I had reached my limit at this point and blew up and it was a scene straight out of every diva movie you could imagine.  I decided at this point it was time just to bring it all to the table so people would stop talking about behind my back and told cast members that were still there.  I then went and confronted the person that was supposedly telling everyone.  I blew up at this person and we didn't talk to each other for a while.  Unfortunately this all happened but it helped me to start talking about it and building my support system and my friend and I have a stronger and better relationship than anyone could ever imagine.  He is such an amazing friend and rock in my time of need.

The point of this blog is that you need a strong support system to get thru the rough times.  There were times when I just wanted to crawl in the corner and cry my eye out.  I was scared to tell people about my being positive mostly out of my own embarrassment and shame actually not because of how someone else was going to react to me.  Once other people knew about my status I had a support system and it was so much easier to get thru the day.  

I have been talking to others recently about being newly diagnosed and they struggles they have face so I wanted to share my story because I was stressed about keeping my secret when there was no need to keep it a secret or be stressed about it.  If you are reading this and looking for a support system talk to someone close to you or start building a new support system.

Monday, December 13, 2010

5 Years

on December 12, 2005 I was working aboard the NCL America Pride of Aloha and I received a phone call informing me that I needed to schedule an appointment to go in and speak with a Doctor at the Maricopa County Public Health Clinic.  Seeing as I was in Hawai'i for at least six months this was not an option and I spoke with an HIV counsler and he broke the news to me.  The whole story can be read in a previous blog.

5 years later I am doing wonderful.  I am healty and on medication that is keeping the virus under control.  I am currently undetectable and have a great CD4 count. 

Please get tested and know your status.  Most importantly keep the conversation going

Tuesday, December 7, 2010

Blood Work Results

Today I had my follow up appointment today with Dr Parks and received the results of my blood work. 

My weight was 211
Temperature was 96.4
Blood Pressure 130 over 61
Viral Load is undetectable
CD4 Count is 612

Viral Load refers to the number of copies of the virus per milliliter of blood plasma. An undetectable generally means that there are less than 50 copies of the virus per milliliter.  Doctors look at your viral load and CD4 count to determine if treatment is needed.

CD4 or more commonly referred to as T-Cells give an idea of how healthy your immune system is.  A normal CD4 count is 500. 

The reason my doctor placed me on a treatment program was because of my low CD4 count after my Achilles re-attachment surgery.

The next blood draw will be in March to ensure that my body does not develop a resistance to my current treatment.

Keep checking back for more and don't forget to go for regular testing.

Tuesday, November 30, 2010

How a friend is affected by HIV.

A friend emailed me this story asking that share it for World AIDS Day.  Please share your story and the strength and courage behind sharing this story encourage you to share yours.  

PART I – November 18, 2000 and the days that followed

In those next days, I went back to Brigham and Women’s Hospital, but this time I had to go to the Infectious Disease clinic - I almost couldn’t do it!  I felt so alone.  Dr Leobowitz told me he was sorry when I met him - I hadn’t remembered that until right now, but I wonder what exactly he was sorry about.  Then he explained the HIV drug regimen and testing schedule I would have to undertake for the next 6 months - I threw up in his office.  I threw up the blue pills I had taken that morning – and that would not be the last time.  I began taking HIV meds – I could never have imagined that I would need to take HIV meds.  I took blue pills and white pills around the clock – I was sick around the clock.  My sister took me to Boston Area Rape Crisis Center and I was alone and I was scared - I wanted to die.  I can’t look back now and find the point at which I no longer wanted to die, but even now I sometimes wonder how I chose to live.

I really tried to get on with my life!  But I felt like I was going at it all alone – and it didn’t feel like my life anymore.  The woman I knew died in a car on the streets of Boston and a different woman fell out of the car.  I couldn’t pray – I was too ashamed to tell God what I had done – I am afraid that maybe this is too much and that this is as good as it gets for me.  My friendships were getting weirder by the day.  It was almost as if we needed a script, some words that would keep our friendships moving forward – keep us all safe from the rape.  But there was no script, no customary way of living with rape - so we just kept moving along and even I began to think that maybe it was all over.  I have thought a lot about this over the last few months and I believe if any of us knew what to say we would have, but instead we just said nothing.  I hate to admit that I questioned my friends and their reactions.  There was only reality of the rape – and at the time I think I was too afraid to really remember it – to speak out loud the words that would have made sense. There seems to be a lack of social conventions to ease the awkwardness that always seems to follow rape – kind of like an emotional illiteracy.  We seem to have words and actions for so many of life’s other tragedies – why not for rape?   Maybe because rape, to most people is inconceivable, it also almost always makes it unspeakable.  I guess there is more of a taboo about talking openly about trauma, about violence and about sex.  The conversational gridlock is so painful!  To have lived the joys and sorrows together with my friends has been a gift, albeit a difficult one.

PART II – Birthdays and Anniversaries
Written on my 3rd Anniversary: November 18, 2003
            It’s been over six months since I wrote and read this story – and what a time it has been.  I walked out of my therapist’s office for the last time in May and I was afraid to think it - but I felt good!  Three years ago today I thought my life was inextricably changed and for quite some time no matter what I attempted to do I believed that to be so.  And until not too long ago I wondered if I would ever really be at peace with how one night had changed me, but then something happened a few weeks ago - almost like a light switch going on.  And once again I have quiet in my mind and heart!
            But what a journey it was to get here - just short of unbearable, but worth the travel ten times over. I remember when this change happened - I wanted to call everyone.  I wanted to scream and laugh and cry all at once – but, I thought I would wait and share it with my friends on this anniversary, because this indescribable sense of peace is theirs as well.  It’s autumn - the leaves have turned and are just about gone, and winter is trying to break through.  It has actually been nice this year to see the changing of the seasons – it has been such a good reminder of how some things must leave so that other things can come.
            I don't really know how my rape changed my friends’ lives, but something like this doesn't come into the world and leave without having some effect and for that, I will be eternally sorry.  But what I do know is how my friends changed my life - how each of them were part of the reason rape did not destroy me, and there were definitely days when I felt destroyed and couldn't imagine a day like today.
               But here I am on November 18, 2003 - and I wanted not just to remember this day, but to celebrate it.  It will be part of me forever, an anniversary I have to bear.  But I think now, I would rather concentrate on celebrating the day I was really born – August 12, 1974.

PART III – Case Closed
Written on September 14, 2006
               Right after the rape, my fundamental assumptions about the world were shattered, and for a while it severed the sustaining connections I have with other people – with any sense of being human.  But I had to make a wager one day – that even in a world in which nothing was certain and the odds changed every day, I had to believe that life, for all its unfathomable horror, still held some undiscovered pleasures.  I think looking back on it – that was the day I got justice.  I got a life back – an imperfect life, but one full of potential.  That is the strange beauty about being broken – the rare opportunity to truly rebuild one’s life – the opportunity to leave behind the pieces of yourself you know can be so much better.  But that also requires that new pieces be added and sometimes I forget that there are pieces of me I am only still getting to know.
               I don’t think I need to see a face anymore – in some way it doesn’t matter who raped me.  It mattered for too long, it made me angry for too long and I know I lost part of my soul to that anger.  I can honestly say now, that I got justice the day I forgave him.  Case closed.

Monday, November 22, 2010

A Conversation I had about testing..

This is a conversation I had this morning on FaceBook chat with a friend.  If you can relate to what he is saying please go get tested and save yourself the worrying.  I sent him a link to the Maricopa County Department Public Health Clinic which does anonymous STD testing. 
 
[Him]
nathan
important question
 
[Me]
yes sir
 
[Him]
ive never had an HIV test
Im really scared to go get one
 
[Me]
why are you scared
 
[Him]
Because Ive been stupid and had unprotected sex
 
[Me]
have you been sick?
 
[Him]
kinda
alot actually
i never get 100 percent better
im always ache
 
[Me]
what kind of sick tho?
 
[Him]
like my stomach hurts and i dont wanna eat and im really really tired all the time
 
[Me]
that be caused by a million things tho. Bad diet not enough sleep stress
the list goes on and on
 
[Him]
I know
Im prolly just being a hypochondriac
 
[Me]
you probably are but you need to go get tested you can put your mind at ease
 
[Him]
Where do i go and would you know how much the test is?
 
[Me]
I believe at the County Clinic it $20 and they test for everything and it is completely anonymous 
 
[Him]
Ok thank you
 
[Me]
 
[Him]
Thank you nathan, i really appreciate it
 
[Me]
of course
I'd go with you to get tested but I am not in Phx.. 
 
[Him]
:):), Im just really nervous that its gonna say yes. my mom would be so disappointed in me
 
[Me]
no she wouldn't. 
 
[Him]
I lied to her and said Ive gotten them before
 
[Me]
so.. go get tested and make it right.
 
[Him]
I will today after the dentist... Thank you again
 
[Me]
when you go ask them for a rapid test so you can get an answer in 20 min. They probably will still do a traditional test but at least you will have an answer before you leave
 
[Him]
Ok...
 
[Me]
may I share our conversation on my blog without your name?
 
[Him]
Yeah 
 
[Me]
I feel there are more people out there like you and your story will help them
call me after your test and let me know how they go

Saturday, November 20, 2010

Share Your Story

As we approach World AIDS Day on December 1, 2010 I want to hear how HIV/AIDS affects you.  Comment on this blog and tell us your story.  Are you positive or negative?  Who do you know that is positive?  Are you getting tested regularly?  Are you too scared to tested? 

Lets get the conversations started everyone.  If you are want to share your story but haven't told anyone yet just email me directly to me on FaceBook http://www.facebook.com/home.php?ref=home#!/nathan.wise1
I want to hear your story.